Uno sguardo raro

ACTION, WE’RE ROLLING! A WHOLE NEW VIEW
PRESENTED AT FESTA DEL CINEMA DI ROMA
“UNO SGUARDO RARO” – THE RARE DISEASE INTERNATIONAL FILM FESTIVAL

The Festival has been created to explain what it means to live with a rare disease or disability, both for the patient and the caregiver. The aim is to offer a different kind of narrative about these issues and a new image of this slice of life through the cinema, one of the most vital and emotionally charged languages, among the most effective to raise consciousness and break down biases. The “rare look”, in fact, is what the works in competition give the public, which will be able to see the world from the perspective of those who do not have much, but can enjoy it to the full because the little they have is precious.

In 2020 the Festival celebrates its 5th edition and it will be heldin 2020 in Rome, in March, from the 9th to the 15th. Together with the renewal of the Call of Proposal for the Competition of “Uno Sguardo Raro” – due to expire on November 30, 2019 (free and open to everybody, it will be available online at show.kirweb.it/2 and can be downloaded from: https://show.kirweb.it/2/edizione-2020/bando/), Claudia Crisafio  and Serena Bartezzati, co-founders, also announced the many novelties of this edition, while they screened a few commercials and short films that have marked the relationship of the community of rare diseases with the audiovisual.

From the first edition until today, approximately 2400 artworks have been submitted to the competition, on themes ranging from rare diseases to disability, fragility, resilience.

A galaxy

The world of rare diseases can be defined as a galaxy of beautiful stories that express, quite often with irony and humor, acceptance, resilience, empathy. Stories, stresses Serena Bartezzati, that can give the audience great emotions and a different perspective: the rare look in the name of the Festival.

A new and exciting animated logo

Easyness, community, rebirth, life, heroes: these are the five words evoked by the symbols of the new “Uno Sguardo Raro” animated logo, presented during the event, and described by its young creator, the eighteen-year-old Serena Paglino, a student of the Istituto Cine-tv R. Rossellini on the stage of the event accompanied by her proud teacher, Luca Arduini. And these are the words that best describe the vision that Uno Sguardo Raro wants to give about the community of the rare diseases patients and the people surrounding them, also through cinema.

Brand new partnerships

The synergies implemented with the various partners provide an idea of exchange. The Director of Istituto Cine-Tv R. Rossellini, Maria Teresa Marano, for example, explained that collaborations such as the one carried out with the Festival – the PCTO–Percorso per le Competenze e l’Orientamento Trasversale convention, that will effectively involve future video professionals on the theme of “different”, promoting the idea of an increasingly inclusive society – will allow the school to provide to the young students involved the opportunity to develop technical skills (specific task of the Institute), as well as attitudes of citizenship, civic sense, solidarity and civilization, also indispensable for the citizen of tomorrow.

The collaboration with Agenzia di Stampa DIRE, Media Partner of the Festival for this 5th edition, is also aimed at young people. The agency will bring the Festival to schools by creating events featuring the screening of feature films on themes linked to Uno Sguardo Raro in six schools of six different cities in Lazio and Italy, as announced by Marta Nicoletti, editor-in-chief of the agency.

Through the partnership established with Facoltà di Scienze della Comunicazione sociale dell’Università Pontificia Salesiana, “Uno Sguardo Raro” will concretely get in touch with university students for the creation of a Round Table connected to the award Premio USR–FERPI on social communication in the field of rare diseases. Serena Bianchini, regional councillor of FERPI – Federazione Italiana Relazioni Pubbliche Italana – for Lazio, says about this award and this event: “an opportunity for the communicators of FERPI to contribute to a proper storytelling of delicate and difficult issues, which is necessary for a cultural change in the name of sharing and social inclusion”.

“From this point of view, these new partnerships that open the doors of schools and universities and the production of the first “Uno sguardo raro” animated logo, created by a young student, who is only 18 years old, express great satisfaction for the artistic direction of the Festival that, since the beginning, has strongly sought the different look of the young generation of students, who will be the men, women and artists of tomorrow”, says the Festival Director, Claudia Crisafio.

Also worth mentioning is the award Premio USR – PA Social edicated to the world of Healthcare and relaunched in conference by Lorella Salce, head of the IFO press office and member of Tavolo sanità dell’Associazione PA Social.

A new contest and two scholarships

The 5th edition also opens to the world of screenwriting with the Competition for Screenwriters on the theme of rare diseases, open to everyone. The winners will attend an intensive screenwriting workshop. Following the results of the workshop, a short film will be produced for the 2021 edition of the Festival.

Finally, in partnership with the acting school Fabbrica Artistica, directed by Rolando Ravello and Massimiliano Franciosa, the Festival will offer 2 scholarships to people suffering from a rare disease: one for the acting class and one for the school’s creative writing class. Federazione Italiana Malattie Rare, UNIAMO FIMR onlus, will work together with the Festival for the selection and the didactic path of the students. For Rolando Ravello, who was the main character of an amusing intervention, his adhesion to the project stems from the fact that the Festival deals with diversity, and diversity deserves a welcome, especially in acting, which facilitates the overcoming of barriers. Margherita Gregori, from UNIAMO FIMR onlus, emphasized the importance of offering an equal vision and equal opportunities of realization, through art.

Angela Ruocco of Health Humanities CNMR of the ISS has recalled the twelfth edition of Volo di Pegaso, an historical artistic, literary and musical competition that has been a partner of the festival since the beginning.

Also attending the conference there were the historical partners of the Festival, O.M.a.R Osservatorio Malattie Rare and the Heyoka Empath community. The Festival is supported by SOBI – multinational biopharmaceutical manufacture focused on rare diseases.

A disease that affects less than 5 out of 10,000 people is called RARE. The most rare diseases affect less than one person out of a million. However, the diseases can be rare, the patients are not. There are about 6,000 rare diseases, including genetic and other diseases that occur in adulthood, and, in Europe alone, about 30 million people are affected.

The organizational body of the Festival is the association “Nove Produzioni”, a de facto, non-party and non-political, non-profit association, founded in 2017 with the support of members from the world of cinema and the community of rare diseases patients. The social purposes are the diffusion of culture as a tool for social integration and for raising awareness on issues of public interest, especially in the context of rare diseases, and, above all, to promote actions for the society through innovative visual communication, based on ethical and inclusion principles.